Brooklyn's Healing Heart

So today’s devotional was in Deuteronomy 31:6. Oddly enough my devotional which is usually packed with verses, only highlighted this one verse on Brooky’s Birthday. In short it’s when the Israelites needed to cross the Jordan while their enemies plotted to attack them. Moses let them know God would cross cross before them with Joshua at the helm. His word to them was to: “Be strong and courageous. Do not be afraid or terrified because of them, for the Lord your God goes with

Although Brooklyn has only been with us for approximately 20 months, she has given us many memories that can last a lifetime. It would be appropriate to say Brooklyn's health challenges gave us some “not so pleasant moments” that are also part of those memories. Her previous near death experiences are episodes I wished she never had to endure, and frankly speaking, episodes I wish I never had to experience. They appeared to be physically traumatizing to her and certainly ment

I remember when your eyes met mine, it was as if God had slowed time I remember your super-long fingers, feet and toes, and even your perfect little button nose I remember your smile that lit up the sky and those big, round, sparkling beautiful eyes I remember your skin as perfect as could be and all the wonderful blessings you helped me to see I remember your grip on my finger so tight, when I felt your squeeze it made everything right. I remember how you’d shimmy, scoot and

Anyone who has spent an extended amount of time in the hospital knows it is a difficult trek. You find yourself riding a roller coaster of emotions. When the patient is doing well, you are great, but when that's not the case, the experience is not so desirable. You live for little luxuries like Starbucks coffee, and 'parent night' massages and manicures. You find yourself getting 'nurse brain', which is where you always hear beeping, no matter where you are, and whether there

some days we wake up crying and we don't know why, but we try to keep the faith we really do try We look in those eyes and see all the pain, We look at her body and see all the strain We know there's nothing to take it away, and sadly that she could be gone any day we all live in the tension of watching her go, But we're confused by her battle vs. what doctors show we know it's nothing but God and His powerful hand, but it doesn't ease the pain because we can't un

As many people know Brooklyn is Sheldon and my granddaughter. More importantly she is our CHD warrior who fights for life every single day. some days and weeks are better than others and this week has been H-E-double. She has gone into what the hospital is terming broncho-spasms and in my opinion they present much like a seizure. Watching a 14 month old have a 'seizure' and having no way to help her is what it must feel like to climb a pole to touch the wires and be electrocu

So Brooky’s Birthday party was a smashing success. It was the most difficult party we’ve ever planned, but it was the most fulfilling experience of life. To paint the picture Brooklyn (as many of you know) is our CHD (Congenital Heart Defect) Warrior. Sheltaya learned of the defect early in her pregnancy, but since Brooklyn was able to spend a month at home, we thought the issue worked itself out. In late August early September 2016, she was told to take Brooky to the hospit

Thank you so much to everyone who has donated the last few weeks have been awesome being able to spend all day with Brooke.. she's even getting used to mommy being there every time she wakes up. I love this time because I get to do more of her care and talk to doctors . Thank you guys so much again. If you still want to donate here is the link: https://www.youcaring.com/sheltayawilliams-812087 #Brooklyn #BeautifulBrooklyn #CHD #YouCaring #Thankyou #Donations #Heart

Sorry long Brooky post ahead I spoke to our social worker and she said her record setting patient lived in the hospital for 310 days. Well tomorrow is May 30 and we have officially lived in Children’s Hospital for 280 days straight. She is struggling with yet another fever, a stuffy nose and she’s just plain miserable so it breaks our heart to watch, but we’re yet grateful that she’s still with us. Know that our goal is not to be the record setting patient but it is to get Br

This is Brooklyn's exact defect. It was cool to see how her heart really functions. Doctors try and explain it , it took me months to understand. Seeing this just gives you a visual of how hard her little heart works each day. #AVSD #heart #BeautifulBrooklyn #CHD